Understanding POLYCYSTIC KIDNEY DISEASE (PKD)

PKD describes a group of genetic diseases that cause cysts to form and grow in the kidney. Genetic diseases are the result of changes, or mutations, in a person's DNA, and can be passed from parent to child. In PKD, cysts are filled with fluid. Over time, they expand, making the kidneys grow larger. This makes it hard for the kidneys to function normally and can lead to kidney failure.

There are two main types of PKD

Autosomal Recessive Polycystic Kidney Disease (ARPKD)

One out of 10 PKD cases are ARPKD or other rare forms.

Learn more about ARPKD

Autosomal Dominant Polycystic Kidney Disease (ADPKD)

The vast majority of PKD cases (9 out of 10) are ADPKD.

Learn more about ADPKD

ADPKD Signs & Symptoms Checklist

Take Action Now To Help Recognize And Manage ADPKD

Take a look at the list of common signs of ADPKD below. Select the signs and symptoms that may apply to you by clicking on the "INCLUDE" buttons below, then download the Signs and Symptoms Checklist and share the results with your healthcare provider. This isn’t meant to be used for diagnosing or determining your prognosis with ADPKD, and these signs and symptoms are not comprehensive. However, this tool can help you have an important discussion with your healthcare provider.

Common Signs of ADPKD

Positive family
history
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High blood
pressure
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Blood in
the urine
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Pain in your
back or side
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Frequent urinary
tract infections
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Early onset of certain signs and symptoms in some people with ADPKD may mean they are at greater risk for accelerated disease progression, reaching kidney failure 20 years earlier than other people with ADPKD.

The time to manage ADPKD is now. The sooner you know whether you have ADPKD and its status, the sooner you and your healthcare provider can decide on a plan for taking care of your kidneys. Although there is no cure, it's important to understand the signs and symptoms of ADPKD.